Recommended Links:

National Hereditary Breast Cancer Helpline – a highly recommended website www.breastcancergenetics.co.uk

National Institute of Clinical Excellence www.nice.org.uk/guidance/cg164

www.ovarian.org.uk – click on BRCA Hub for information. Allyson Kaye is the Chair and Founder. They have a magazine which you can request and very informative.

Fix Royal Marsden Link –A Beginners Guide to BRCA1 and BRCA2- The Royal Marsden: https://www.royalmarsden.nhs.uk/sites/default/files/files_trust/beginners-guide-to-brca1-and-brca2.PDF

www.breastcancer.lifetips.com

www.actioncancer.org

Hereditary Breast and Ovarian Cancer Foundation (www.hboc.ca )

www.hystersisters.com

National Cancer Institute – www.cancer.gov  – very good factsheet on BRCA1and2

www.breastcancer.org  
Useful information on guidance for women with gene abnormalities

www.macmillan.org.uk

www.cancerresearchuk.org

www.breastcancercampaign.org

Northern Ireland Charities who offer support and provide services:

Action Cancer – www.actioncancer.org –
(highly recommended for their Peer Mentor Programme.)

Cancer Focus NI – www.cancerfocusni.org

Pretty in Pink – www.prettynpink.org

Cancer Lifeline  www.cancerlifeline.info     – North Belfast Charity offering support

FORCE (Facing our Risk of Cancer Empowered) www.facingourrisk.org –
a fantastic American Based Information Website for High Risk BRCA 1 and 2.

In Northern Ireland we have a High Risk Surveillance Programme.

Go to www.cancerscreening.hscni.net for further information on the programme offered to families deemed as ‘High Risk.
Follow the link under Breast Screening on the website to high risk.

BRCA information for families carrying the BRCA gene mutation – Belfast Health and Social Care Trust BRCA Clinic. Contact: email: familyhistory@belfasttrust.hscni.net

Royal Marsden – A Beginners Guide to BRCA 1 and 2. https://www.royalmarsden.nhs.uk/sites/default/files/files_trust/beginners-guide-to-brca1-and-brca2.PDF

Breast Cancer in Families booklet– email: info@breastcancercare.org.uk for your free copy or visit www.breastcancercare.org.uk

Understanding Risk Reducing Breast Surgery – a very informative booklet by Macmillan Cancer Support. Freephone 0808 808 0000 (Mon-Fri 9am-8pm)
for your copy or general enquiries to 020 7840 7840.

Resource Booklet
BRCA Northern Ireland - an information booklet (purple) requested from BRCA clinic at BCH Call Suzanne Dawson on 02895048248 to request a copy.
BRCA Positive – Private Support for BRCA Carriers.

‘I’m Still Standing’  by Wendy Watson -www.imstillstanding.co.uk

‘Designer Genes’ by Emma Hannigan www.emmahannigan.com

‘Singing the Life’  by Elizabeth Bryan

‘Pretty Is What Changes: Impossible Choices, The Breast Cancer Gene, and How I Defied My Destiny’ by Jessica Queller

www.claireandthegenie.com

www.meandmrbrca1.co.uk

Get involved in Belfast Lagan Dragons Boat Team –
Northern Ireland’s first ever breast cancer survivor Dragon Boat Team www.lagandragons.com Tel: 07708 274319

Please feel free to suggest other titles or publications you have found.

If you are on FACEBOOK you only have to search for BRCA and you will see lots of groups to join. Below are some examples ‘BRCA Link NI’  follow:

Beyond the Pink Moon
BRCA 1 & 2 Ireland and the UK
BRCA Positive
NHBCH – National Hereditary Breast Cancer Helpline
Bright Pink
BRCA Sisterhood
FORCE
Pink Ribbon

Private Testing Links:

Gene Health UK – www.genehealthuk.com
COLOR – www.color.com  

FUNDRAISING Link to Research in Belfast:

We often get asked about donations specifically for BRCA in Northern Ireland. If interested in FUNDRAISING for research specifically in the BRCA Area (breast, ovarian, prostate)
contact Helen Barnes who is Head of Medical fundraising at Queens University Cancer for Centre Research and Cell Biology. Email:  h.barnes@qub.ac.uk