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Recommended Links:

National Hereditary Breast Cancer Helpline – a highly recommended website

Useful Guidance from NICE: Draft Updated Version of the National Institute for
Health and Clinical Excellence (NICE) – Familial breast cancer

Hereditary Breast and Ovarian Cancer Foundation ( )

National Cancer Institute –  – very good factsheet on BRCA1and2  
Useful information on guidance for women with gene abnormalities


In Northern Ireland we have a High Risk Surveillance Programme.

Go to for further information on the programme offered to families deemed as ‘High Risk.’

Recommended Information for High Risk

BRCA information for families carrying the BRCA gene mutation – Belfast Health and Social Care Trust BRCA Clinic. Contact: email:

Royal Marsden – A Beginners Guide to BRCA 1 and 2.

Breast Cancer in Families booklet– email: for your free copy or visit

Understanding Risk Reducing Breast Surgery – a very informative booklet by Macmillan Cancer Support. Freephone 0808 808 0000 (Mon-Fri 9am-8pm) for your copy or general enquiries to 020 7840 7840.

PDF Information Booklet for BRCA carriers.

Suggested Books

‘I’m Still Standing’  by Wendy Watson

‘Designer Genes’ by Emma Hannigan

‘Singing the Life’  by Elizabeth Bryan

‘Pretty Is What Changes: Impossible Choices, The Breast Cancer Gene, and How I Defied My Destiny’ by Jessica Queller



Please feel free to suggest other titles or publications you have found.





If you are on FACEBOOK you only have to search for BRCA and you will see lots of groups to join. Below are some examples ‘BRCA Link Ni’  follow:

NHBCH – National Hereditary Breast Cancer Helpline

Bright Pink
Wendy’s Army
BRCA Sisterhood
I’m Still Standing
Pink Ribbon