Useful Guidance from NICE: Draft Updated Version of the National Institute for
Hereditary Breast and Ovarian Cancer Foundation (www.hboc.ca )
National Cancer Institute – www.cancer.gov – very good factsheet on BRCA1and2
In Northern Ireland we have a High Risk Surveillance Programme.
Go to www.cancerscreening.hscni.net for further information on the programme offered to families deemed as ‘High Risk.’
Recommended Information for High Risk
BRCA information for families carrying the BRCA gene mutation – Belfast Health and Social Care Trust BRCA Clinic. Contact: email: firstname.lastname@example.org
Royal Marsden – A Beginners Guide to BRCA 1 and 2. http://www.royalmarsden.nhs.uk/SiteCollectionDocuments/patient-information/brca.pdf
Understanding Risk Reducing Breast Surgery – a very informative booklet by Macmillan Cancer Support. Freephone 0808 808 0000 (Mon-Fri 9am-8pm) for your copy or general enquiries to 020 7840 7840.
‘I’m Still Standing’ by Wendy Watson -www.imstillstanding.co.uk
‘Designer Genes’ by Emma Hannigan www.emmahannigan.com
‘Singing the Life’ by Elizabeth Bryan
‘Pretty Is What Changes: Impossible Choices, The Breast Cancer Gene, and How I Defied My Destiny’ by Jessica Queller
Please feel free to suggest other titles or publications you have found.
If you are on FACEBOOK you only have to search for BRCA and you will see lots of groups to join. Below are some examples ‘BRCA Link Ni’ follow:
NHBCH – National Hereditary Breast Cancer Helpline